By John Ballard
We use the term health care carelessly when we should be saying "disease management" or "risk assessment." That word "care" implies a level of empathy and understanding often missing in the process. Amy Berman's story drives the point home with her first-person account of what happened to her when she faced the diagnosis of a terminal condition.
For those of you who haven�t yet heard, I have recently been diagnosed with Stage IV inflammatory breast cancer. This rare form of breast cancer is known for its rapid spread. True to form, it has metastasized to my spine. This means my time is limited. As a nurse, I knew it from the moment I saw a reddened spot on my breast and recognized it for what it was.My recent journey through the health care system has been eye-opening. In only a few months, I have witnessed the remarkable capabilities and the stunning shortcomings of our health care system firsthand. I am writing here because in the time I have left, I hope my story and my journey can help illustrate why some of the reforms that my colleagues and I at the John A. Hartford Foundation, as well as many others, have championed are so important.
Rather than parse the story here, I'm suggesting that readers go to the link, not only for the outcome but the comments thread that follows. There you will find as sensitive and caring a discussion of health CARE as can be found these days. Of course there are a couple of cold-blooded individuals who make appearances, but their comments only underscore the overall message of Ms. Berman's post and the other comments.
Ummm, i don't see a link.
ReplyDeleteBut maybe that's because of recent security changes in my browser.
My bad. It's fixed now.
ReplyDeleteThanks for letting me know.
(Poor excuse, but I'm too distracted by events in Cairo.)